Category: Practice News

European Registry of Hereditary Pancreatic Diseases

What is EUROPAC?

EUROPAC is a registry for families with histories of Familial Pancreatic Cancer and Hereditary Pancreatitis. The EUROPAC study also runs surveillance programmes for individuals who are deemed high-risk. Using the family history individuals provide, they can assess their lifetime risk of developing pancreatic cancer. Surveillance is offered on a yearly basis, and using a combination of CT, EUS, MRI and blood tests.

EUROPAC Researching Hereditary Pancreatic Diseases (europactrial.com)

In order to ensure people with inherited risk factors for pancreatic cancer have access to a high-risk surveillance pathway aligned to NG85 NICE guidance, NHS England has partnered with EUROPAC. This partnership will provide a route from the NHS into a surveillance programme run at participating NHS Trusts.

The nearest surveillance centre for patients in the SWAG Cancer Alliance region is:

  • University Hospitals Bristol and Weston NHS Foundation Trust.

For more ways to contact EUROPAC, please click on poster below.

SWAG EUROPAC Poster Final